My little guy has many medical appointments, often they require going back to Children’s Hospital for them. Lotta tests, lotta weird hours, lotta thinking about the ‘what ifs’.
This past week we were pulling an all-day visit starting with sedated MRIs and blood work. Trying to keep a 3 year old steady enough to do an MRI is very difficult. He has had about 25 of these so far in his life. It used to be so much easier mentally when he was a baby and didn’t know what was going on. Now he’s reasonably afraid when he sees we’re going to the hospital. My little guy is a Champ. He’s afraid, but he keeps going because he’s a brave little guy.
After our first set of tests, we grabbed lunch and spent a little bit of time outdoors so he could run about for a bit. Currently, our air quality is ranked somewhere between Horrible and Mordor. Our playtime outdoors was short, and we went up to Oncology to wait. I took this opportunity to create a piece for the parent’s common room. While this part of the hospital is newer than where we lived, I wanted to brighten up the space that I know every parent wishes they didn’t need.
We got some great news from our Doctor. Kyler’s scans, tests, and blood all are looking stable, and we can now go from every 3 months, to every 6 months! This is wonderful news! I want to be excited for it, but at the same time, I know how fragile remission is. My son and I live for each moment, every silly giggle and song. You hold tight to Hope, because some days it’s all you have to hold on to. #SeptemberIsGoldForChildhoodCancerAwarness
This was the first time I’ve left a random piece of art for people to enjoy. If 2020 has shown us anything, it’s we need to spread joy and hope whenever and where ever we can. Expect more random art gifts!
